Genetic Epidemiology, Translational Neurogenomics, Psychiatric Genetics and Statistical Genetics Laboratories investigate the pattern of disease in families, particularly identical and non-identical twins, to assess the relative importance of genes and environment in a variety of important health problems.
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PMID
38052068
TITLE
Self-Reported Stuttering Severity Is Accurate: Informing Methods for Large-Scale Data Collection in Stuttering.
ABSTRACT
PURPOSE NlmCategory: UNASSIGNED
To our knowledge, there are no data examining the agreement between self-reported and clinician-rated stuttering severity. In the era of big data, self-reported ratings have great potential utility for large-scale data collection, where cost and time preclude in-depth assessment by a clinician. Equally, there is increasing emphasis on the need to recognize an individual's experience of their own condition. Here, we examined the agreement between self-reported stuttering severity compared to clinician ratings during a speech assessment. As a secondary objective, we determined whether self-reported stuttering severity correlated with an individual's subjective impact of stuttering.
METHOD NlmCategory: UNASSIGNED
To our knowledge, there are no data examining the agreement between self-reported and clinician-rated stuttering severity. In the era of big data, self-reported ratings have great potential utility for large-scale data collection, where cost and time preclude in-depth assessment by a clinician. Equally, there is increasing emphasis on the need to recognize an individual's experience of their own condition. Here, we examined the agreement between self-reported stuttering severity compared to clinician ratings during a speech assessment. As a secondary objective, we determined whether self-reported stuttering severity correlated with an individual's subjective impact of stuttering. Speech-language pathologists conducted face-to-face speech assessments with 195 participants (137 males) aged 5-84 years, recruited from a cohort of people with self-reported stuttering. Stuttering severity was rated on a 10-point scale by the participant and by two speech-language pathologists. Participants also completed the Overall Assessment of the Subjective Experience of Stuttering (OASES). Clinician and participant ratings were compared. The association between stuttering severity and the OASES scores was examined.
RESULTS NlmCategory: UNASSIGNED
To our knowledge, there are no data examining the agreement between self-reported and clinician-rated stuttering severity. In the era of big data, self-reported ratings have great potential utility for large-scale data collection, where cost and time preclude in-depth assessment by a clinician. Equally, there is increasing emphasis on the need to recognize an individual's experience of their own condition. Here, we examined the agreement between self-reported stuttering severity compared to clinician ratings during a speech assessment. As a secondary objective, we determined whether self-reported stuttering severity correlated with an individual's subjective impact of stuttering. Speech-language pathologists conducted face-to-face speech assessments with 195 participants (137 males) aged 5-84 years, recruited from a cohort of people with self-reported stuttering. Stuttering severity was rated on a 10-point scale by the participant and by two speech-language pathologists. Participants also completed the Overall Assessment of the Subjective Experience of Stuttering (OASES). Clinician and participant ratings were compared. The association between stuttering severity and the OASES scores was examined. There was a strong positive correlation between speech-language pathologist and participant-reported ratings of stuttering severity. Participant-reported stuttering severity correlated weakly with the four OASES domains and with the OASES overall impact score.
CONCLUSIONS NlmCategory: UNASSIGNED
To our knowledge, there are no data examining the agreement between self-reported and clinician-rated stuttering severity. In the era of big data, self-reported ratings have great potential utility for large-scale data collection, where cost and time preclude in-depth assessment by a clinician. Equally, there is increasing emphasis on the need to recognize an individual's experience of their own condition. Here, we examined the agreement between self-reported stuttering severity compared to clinician ratings during a speech assessment. As a secondary objective, we determined whether self-reported stuttering severity correlated with an individual's subjective impact of stuttering. Speech-language pathologists conducted face-to-face speech assessments with 195 participants (137 males) aged 5-84 years, recruited from a cohort of people with self-reported stuttering. Stuttering severity was rated on a 10-point scale by the participant and by two speech-language pathologists. Participants also completed the Overall Assessment of the Subjective Experience of Stuttering (OASES). Clinician and participant ratings were compared. The association between stuttering severity and the OASES scores was examined. There was a strong positive correlation between speech-language pathologist and participant-reported ratings of stuttering severity. Participant-reported stuttering severity correlated weakly with the four OASES domains and with the OASES overall impact score. Participants were able to accurately rate their stuttering severity during a speech assessment using a simple one-item question. This finding indicates that self-report stuttering severity is a suitable method for large-scale data collection. Findings also support the collection of self-report subjective experience data using questionnaires, such as the OASES, which add vital information about the participants' experience of stuttering that is not captured by overt speech severity ratings alone.
DATE PUBLISHED
2023 Dec 05
HISTORY
PUBSTATUS PUBSTATUSDATE
medline 2023/12/06 03:41
pubmed 2023/12/06 03:41
entrez 2023/12/05 17:24
AUTHORS
NAME COLLECTIVENAME LASTNAME FORENAME INITIALS AFFILIATION AFFILIATIONINFO
Horton S Horton Sarah S Department of Audiology and Speech Pathology, University of Melbourne, Victoria, Australia.
Jackson V Jackson Victoria V Department of Medical Biology, University of Melbourne, Victoria, Australia.
Boyce J Boyce Jessica J Department of Audiology and Speech Pathology, University of Melbourne, Victoria, Australia.
Franken MC Franken Marie-Christine MC Department of Otorhinolaryngology, Speech and Hearing Centre, Sophia Children's Hospital, Erasmus University Medical Centre, Rotterdam, the Netherlands.
Siemers S Siemers Stephanie S Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
John MS John Miya St MS Department of Audiology and Speech Pathology, University of Melbourne, Victoria, Australia.
Hearps S Hearps Stephen S Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
van Reyk O van Reyk Olivia O Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
Braden R Braden Ruth R Department of Audiology and Speech Pathology, University of Melbourne, Victoria, Australia.
Parker R Parker Richard R QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.
Vogel AP Vogel Adam P AP Redenlab Inc. Melbourne, Victoria, Australia.
Eising E Eising Else E Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands.
Amor DJ Amor David J DJ Royal Children's Hospital, Melbourne, Victoria, Australia.
Irvine J Irvine Janelle J Stuttering Treatment and Research Trust (START), Auckland, New Zealand.
Fisher SE Fisher Simon E SE Donders Institute for Brain, Cognition and Behaviour, Radboud University, Nijmegen, the Netherlands.
Martin NG Martin Nicholas G NG QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.
Reilly S Reilly Sheena S Menzies Health Institute Queensland, Griffith University, Southport, Australia.
Bahlo M Bahlo Melanie M Department of Medical Biology, University of Melbourne, Victoria, Australia.
Scheffer I Scheffer Ingrid I Florey Institute of Neuroscience and Mental Health, Melbourne, Victoria, Australia.
Morgan A Morgan Angela A Royal Children's Hospital, Melbourne, Victoria, Australia.
INVESTIGATORS
JOURNAL
VOLUME:
ISSUE:
TITLE: Journal of speech, language, and hearing research : JSLHR
ISOABBREVIATION: J Speech Lang Hear Res
YEAR: 2023
MONTH: Dec
DAY: 05
MEDLINEDATE:
SEASON:
CITEDMEDIUM: Internet
ISSN: 1558-9102
ISSNTYPE: Electronic
MEDLINE JOURNAL
MEDLINETA: J Speech Lang Hear Res
COUNTRY: United States
ISSNLINKING: 1092-4388
NLMUNIQUEID: 9705610
PUBLICATION TYPE
PUBLICATIONTYPE TEXT
Journal Article
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